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Emergency Information 
Hereditary Cancer Clinic   at
Stollery Children's Hospital
Specialty: Genetics
Connect Care Department: EDM STO MSB CLINICAL GENETICS
Estimated time to routine appointment: >18 months
Alberta Health Services - Edmonton Zone
SERVICE DESCRIPTION
Provides genetic risk assessment, counselling and genetic testing for Albertans and their families who are affected by or at risk for a hereditary cancer syndrome.The goals for this clinic are to facilitate cancer management decisions, and recommend optimal screening and cancer prevention strategies for affected individuals and high risk families.

The consultation service begins with an assessment of a patients' personal and family history for features of hereditary cancer syndromes.

Genetic Counselling is then provided to patients who meet the criteria, in order to share genetic risk information, discuss the benefits, risks, limitations of genetic testing (if indicated for the patient and / or at-risk relatives), and to discuss recommendations for cancer management and surveillance.

Telehealth is available for Alberta residents.

For more information visit the Clinical & Metabolic Genetics website.
Provides genetic risk assessment, counselling and genetic testing for Albertans and their families who are affected by or at risk for a hereditary cancer syndrome.The goals for this clinic are to facilitate cancer management decisions, and recommend optimal screening and cancer prevention strategies for affected individuals and high risk families.

The consultation service begins with an assessment of a patients' personal and family history for features of hereditary cancer syndromes.

Genetic Counselling is then provided to patients who meet the criteria, in order to share genetic risk information, discuss the benefits, risks, limitations of genetic testing (if indicated for the patient and / or at-risk relatives), and to discuss recommendations for cancer management and surveillance.

Telehealth is available for Alberta residents.

For more information visit the Clinical & Metabolic Genetics website.
ELIGIBILITY REQUIREMENTS
Albertans affected or at moderate to high risk for a hereditary cancer syndrome determined through a genetic risk evaluation of the individual's medical and family history
Unaffected Individuals
Individuals unaffected by cancer are usually not eligible for genetic testing except where a mutation is known in the family
Known Familial Mutation
Individuals or relatives of an individual with a confirmed pathogenic or likely pathogenic mutation in hereditary cancer gene
Breast Cancer
1.Personal history of breast cancer diagnosed≤35§
2.Personal history of two breast primaries, both diagnosed≤60 OR at least one diagnosed≤50§
3.Personal history of breast and ovarian cancer*§
4.Personal history of breast and pancreatic cancer§
5.Personal history of breast cancer≤50 AND family history of breast cancer≤50
6.Personal history of breast cancer AND family history of ovarian cancer* diagnosed at any age
7.Personal history of breast cancer AND 2 family members with breast cancer; one diagnosed ≤50
8.Personal history of breast cancer AND 2 family members with pancreatic adenocarcinoma at any age§
9.Personal history of triple negative breast cancer (ER-ve, PR-ve, Her2-ve) diagnosed ≤65§
10.Personal history of male breast cancer diagnosed at any age§
11.Personal history of breast cancer and family history of male breast cancer
12.Personal history of breast cancer at any age and a first degree relative meeting a “§”criterion§
Ovarian Cancer
1. Personal history of invasive epithelial ovarian/fallopian tube/primary peritoneal cancer at any age§
            §Mainstreaming criteria;patient meeting these criteria can have genetic testing ordered through approved surgeon/oncologists
Pancreatic Cancer
1.Personal history of pancreatic adenocarcinoma at any age AND ≥2 relatives with breast/ovarian/pancreatic cancer at any age
Ashkenazi Jewish Families
1.Personal history of breast or ovarian cancer* at any age
2.Unaffected individuals with a 1st or 2nd-degree relative with breast/ovarian cancer* at any age
Familial Adenomatous Polyposis (FAP) and other polyposis syndromes
1.Suspected or known diagnosis of FAP or other polyposis syndrome in patient or close relative
2.Personal history of ≥10 polyps (adenomatous, hamartomatous)
Lynch Syndrome (Hereditary Non-Polyposis Colorectal Cancer)
1.Patients meeting Amsterdam I or II Criteria.
    a. 3 affected family members (colon, uterus, stomach, small intestine, ovary, pancreas, gallbladder, transitional cell cancer of renal pelvis/ureter/bladder) AND
     b. 1 cancer diagnosis ≤50 years AND
     c. 2 successive generations
2.Any patient with abnormal immunohistochemistry (IHC) and/or microsatellite instability (MSI) results suggestive of Lynch syndrome
3.Patients meeting Bethesda Criteria (or those with family histories meeting these criteria) may be referred for IHC testing and/or MSI testing on the tumours from the affected family members
Bethesda Criteria include:
  • CRC or endometrial cancer ≤50 years
  • Synchronous or metachronous Lynch syndrome cancers  at any age
  • CRC in a patient with a 1st degree relative with a Lynch syndrome tumour; one diagnosis ≤50
  • CRC in a patient with two 1st or 2nd degree relatives with Lynch syndrome tumours diagnosed at any age
Albertans affected or at moderate to high risk for a hereditary cancer syndrome determined through a genetic risk evaluation of the individual's medical and family history
Unaffected Individuals
Individuals unaffected by cancer are usually not eligible for genetic testing except where a mutation is known in the family
Known Familial Mutation
Individuals or relatives of an individual with a confirmed pathogenic or likely pathogenic mutation in hereditary cancer gene
Breast Cancer
1.Personal history of breast cancer diagnosed≤35§
2.Personal history of two breast primaries, both diagnosed≤60 OR at least one diagnosed≤50§
3.Personal history of breast and ovarian cancer*§
4.Personal history of breast and pancreatic cancer§
5.Personal history of breast cancer≤50 AND family history of breast cancer≤50
6.Personal history of breast cancer AND family history of ovarian cancer* diagnosed at any age
7.Personal history of breast cancer AND 2 family members with breast cancer; one diagnosed ≤50
8.Personal history of breast cancer AND 2 family members with pancreatic adenocarcinoma at any age§
9.Personal history of triple negative breast cancer (ER-ve, PR-ve, Her2-ve) diagnosed ≤65§
10.Personal history of male breast cancer diagnosed at any age§
11.Personal history of breast cancer and family history of male breast cancer
12.Personal history of breast cancer at any age and a first degree relative meeting a “§”criterion§
Ovarian Cancer
1. Personal history of invasive epithelial ovarian/fallopian tube/primary peritoneal cancer at any age§
            §Mainstreaming criteria;patient meeting these criteria can have genetic testing ordered through approved surgeon/oncologists
Pancreatic Cancer
1.Personal history of pancreatic adenocarcinoma at any age AND ≥2 relatives with breast/ovarian/pancreatic cancer at any age
Ashkenazi Jewish Families
1.Personal history of breast or ovarian cancer* at any age
2.Unaffected individuals with a 1st or 2nd-degree relative with breast/ovarian cancer* at any age
Familial Adenomatous Polyposis (FAP) and other polyposis syndromes
1.Suspected or known diagnosis of FAP or other polyposis syndrome in patient or close relative
2.Personal history of ≥10 polyps (adenomatous, hamartomatous)
Lynch Syndrome (Hereditary Non-Polyposis Colorectal Cancer)
1.Patients meeting Amsterdam I or II Criteria.
    a. 3 affected family members (colon, uterus, stomach, small intestine, ovary, pancreas, gallbladder, transitional cell cancer of renal pelvis/ureter/bladder) AND
     b. 1 cancer diagnosis ≤50 years AND
     c. 2 successive generations
2.Any patient with abnormal immunohistochemistry (IHC) and/or microsatellite instability (MSI) results suggestive of Lynch syndrome
3.Patients meeting Bethesda Criteria (or those with family histories meeting these criteria) may be referred for IHC testing and/or MSI testing on the tumours from the affected family members
Bethesda Criteria include:
  • CRC or endometrial cancer ≤50 years
  • Synchronous or metachronous Lynch syndrome cancers  at any age
  • CRC in a patient with a 1st degree relative with a Lynch syndrome tumour; one diagnosis ≤50
  • CRC in a patient with two 1st or 2nd degree relatives with Lynch syndrome tumours diagnosed at any age
REFERRAL SUBMISSION INSTRUCTIONS
Follow these steps before sending a referral. Incomplete referrals may be returned or declined.
  1. Review the Service Description, Eligibility Requirements, Pathways and Advice options to ensure your patient is appropriate for this service.
  2. Click the (+) icon in the Referral Guidelines table to view the required information and investigations that must accompany the referral.
  3. Follow the applicable Referral Process and submit referral.
Follow these steps before sending a referral. Incomplete referrals may be returned or declined.
  1. Review the Service Description, Eligibility Requirements, Pathways and Advice options to ensure your patient is appropriate for this service.
  2. Click the (+) icon in the Referral Guidelines table to view the required information and investigations that must accompany the referral.
  3. Follow the applicable Referral Process and submit referral.
Referral instructions for primary care, community care, private
providers etc. who do not send referrals via Connect Care.
REFERRAL PROCESS - FOR NON-CONNECT CARE USERS
Complete the referral form and fax it to the service using the contact information in this profile.

For Urgent Referrals: Indicate on the referral "urgent" and fax completed referral form using the contact information in this profile.  Clearly indicate how management and/or treatment would be altered based on a diagnosis or if your patient is palliative.
Please consider banking DNA if your patient is near end of life and clearly indicate this on the lab requisition. For more information please call the Edmonton Molecular Genetics Laboratory at 780-407-1015.
For Emergency Referrals: Please call the University of Alberta Hospital - Stollery Children's Hospital Switchboard at 780-407-8822 and ask to speak to the Medical Geneticist on call.
Otherwise, please direct patients to the nearest Emergency Department or Urgent Care Facility.
Complete the referral form and fax it to the service using the contact information in this profile.

For Urgent Referrals: Indicate on the referral "urgent" and fax completed referral form using the contact information in this profile.  Clearly indicate how management and/or treatment would be altered based on a diagnosis or if your patient is palliative.
Please consider banking DNA if your patient is near end of life and clearly indicate this on the lab requisition. For more information please call the Edmonton Molecular Genetics Laboratory at 780-407-1015.
For Emergency Referrals: Please call the University of Alberta Hospital - Stollery Children's Hospital Switchboard at 780-407-8822 and ask to speak to the Medical Geneticist on call.
Otherwise, please direct patients to the nearest Emergency Department or Urgent Care Facility.
REFERRAL PROCESS - FOR CONNECT CARE USERS
Send an Internal Referral using the Ambulatory Referral Order to Genetics, type EDM STO MSB CLINICAL GENETICS in the “To Department” section and complete order.

For Urgent Referrals: Indicate on the referral "urgent" and fax completed referral form using the contact information in this profile.  Clearly indicate how management and/or treatment would be altered based on a diagnosis or if your patient is palliative.
Please consider banking DNA if your patient is near end of life and clearly indicate this on the lab requisition. For more information please call the Edmonton Molecular Genetics Laboratory at 780-407-1015.
For Emergency Referrals: Please call the University of Alberta Hospital - Stollery Children's Hospital Switchboard at 780-407-8822 and ask to speak to the Medical Geneticist on call.
Otherwise, please direct patients to the nearest Emergency Department or Urgent Care Facility.
Send an Internal Referral using the Ambulatory Referral Order to Genetics, type EDM STO MSB CLINICAL GENETICS in the “To Department” section and complete order.

For Urgent Referrals: Indicate on the referral "urgent" and fax completed referral form using the contact information in this profile.  Clearly indicate how management and/or treatment would be altered based on a diagnosis or if your patient is palliative.
Please consider banking DNA if your patient is near end of life and clearly indicate this on the lab requisition. For more information please call the Edmonton Molecular Genetics Laboratory at 780-407-1015.
For Emergency Referrals: Please call the University of Alberta Hospital - Stollery Children's Hospital Switchboard at 780-407-8822 and ask to speak to the Medical Geneticist on call.
Otherwise, please direct patients to the nearest Emergency Department or Urgent Care Facility.
COMMUNICATION PROCESS
  • Referral receipt to referring source within 7 days.
  • Acceptance via appointment details or wait list status letter to referring source and patient within 14 days.
  • Wait list status update every 90 days.
  • Appointment outcome to referral source within 30 days.
 
PHONE
780-407-7333
FAX
780-407-6845
REFERRAL PHONE
780-407-7333
REFERRAL FAX
780-407-6845
REFERRAL FORM
Edmonton Hereditary Cancer Clinic Referral Form
Please note that the most up to date acceptance criteria is listed above under “Eligibility Requirements”.
Edmonton Hereditary Cancer Clinic Referral Form
Please note that the most up to date acceptance criteria is listed above under “Eligibility Requirements”.
CLICK + TO VIEW REFERRAL GUIDELINES
+-
Routine Reason for Referral
Access Targets convey the clinically appropriate timeframe patients should be seen within, by reason for referral and priority level.
Access Target
Required Information/Investigations
Investigation Timing
Additional Details
+-
Familial adenomatous polyposis
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please include all relevant information including:
  • Personal history of cancer
  • Family history of cancer (age of diagnosis, type, and relation to your patient)
  • Any pathology or genetic testing results available
 
Current
+-
Family history of cancer
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please include all relevant information including:
  • Personal history of cancer
  • Family history of cancer (age of diagnosis, type, and relation to your patient)
  • Any pathology or genetic testing results available
 
Current
+-
Genetic counseling
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please include all relevant information including:
  • Personal history of cancer
  • Family history of cancer (age of diagnosis, type, and relation to your patient)
  • Any pathology or genetic testing results available
 
Current
+-
Hereditary breast and ovarian cancer syndrome
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please include all relevant information including:
  • Personal history of cancer
  • Family history of cancer (age of diagnosis, type, and relation to your patient)
  • Any pathology or genetic testing results available
 
Current
+-
Hereditary cancer-predisposing syndrome
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please include all relevant information including:
  • Personal history of cancer
  • Family history of cancer (age of diagnosis, type, and relation to your patient)
  • Any pathology or genetic testing results available
 
Current
+-
Hereditary neoplastic syndrome
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please include all relevant information including:
  • Personal history of cancer
  • Family history of cancer (age of diagnosis, type, and relation to your patient)
  • Any pathology or genetic testing results available
 
Current
+-
Lynch syndrome
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please include all relevant information including:
  • Personal history of cancer
  • Family history of cancer (age of diagnosis, type, and relation to your patient)
  • Any pathology or genetic testing results available
 
Current
+-
Pancreatic cancer
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please include all relevant information including:
  • Personal history of cancer
  • Family history of cancer (age of diagnosis, type, and relation to your patient)
  • Any pathology or genetic testing results available
 
Current
PATIENT APPOINTMENT INFORMATION
Email
Print
 
MISSED APPOINTMENT GUIDELINES
If you are unable to attend a scheduled appointment, please contact the clinic a minimum of 48 hours in advance.
If you are unable to attend a scheduled appointment, please contact the clinic a minimum of 48 hours in advance.
 
HOURS OF OPERATION
Monday: 8:00 am - 4:00 pm
Tuesday: 8:00 am - 4:00 pm
Wednesday: 8:00 am - 4:00 pm
Thursday: 8:00 am - 4:00 pm
Friday: 8:00 am - 4:00 pm
   
 
ADDRESS
8-53 Medical Sciences Building
8440 112 Street
Edmonton Alberta
T6G 2B7
PATIENT APPOINTMENT INSTRUCTIONS
  • Bring your Alberta health care card and a piece of government issued photo ID.
  • Check in at reception 15 minutes prior to your scheduled appointment time.
  • You may bring a family member or significant other during your consultation.
  • Interpretation services are available. Please notify the clinic before your appointment if you require an interpreter.
  • Bring your Alberta health care card and a piece of government issued photo ID.
  • Check in at reception 15 minutes prior to your scheduled appointment time.
  • You may bring a family member or significant other during your consultation.
  • Interpretation services are available. Please notify the clinic before your appointment if you require an interpreter.
 
DIRECTIONS
The Stollery Children’s Hospital is located in the Walter C. Mackenzie centre located on the University of Alberta campus. There is a patient drop-off and pickup area at the main entrance of the hospital on the east building on 112th street and 84th avenue, directly north of the University of Alberta and Stollery Children’s Hospital’s emergency departments.                                                  Bus stops at 112 and 114 St
LRT Health Sciences station is located west across 114 St.
The Stollery Children’s Hospital is located in the Walter C. Mackenzie centre located on the University of Alberta campus. There is a patient drop-off and pickup area at the main entrance of the hospital on the east building on 112th street and 84th avenue, directly north of the University of Alberta and Stollery Children’s Hospital’s emergency departments.                                                  Bus stops at 112 and 114 St
LRT Health Sciences station is located west across 114 St.
 
PHONE
780-407-7333
 
PARKING INSTRUCTIONS
Rates apply 24 hours per day, and are in effect for all public parkers, including those with provincially issued placards for persons with disabilities. Public parking is GST exempt.
Pay by Plate machines accept Canadian coins or credit card (Visa, MasterCard, American Express). Maximum 28 Canadian coins per transaction, no pennies.
Machines provide no change.Pay on Foot machines accept Canadian coins and bills, or credit card (Visa, MasterCard, American Express). These machines will provide change.
Parking Office accepts payment by cash, credit card, debit or cheque.
Rates apply 24 hours per day, and are in effect for all public parkers, including those with provincially issued placards for persons with disabilities. Public parking is GST exempt.
Pay by Plate machines accept Canadian coins or credit card (Visa, MasterCard, American Express). Maximum 28 Canadian coins per transaction, no pennies.
Machines provide no change.Pay on Foot machines accept Canadian coins and bills, or credit card (Visa, MasterCard, American Express). These machines will provide change.
Parking Office accepts payment by cash, credit card, debit or cheque.
 
EMAIL
WEBSITE
https://www.albertahealthservices.ca/info/page15513.aspx
VIRTUAL APPOINTMENT INFORMATION
Virtual appointments are available.
Virtual appointments are available.
 
 
WHEELCHAIR ACCESSIBILITY
Yes

The primary purpose of the All Locations list is to let the user easily access any location of a healthcare service without going back to the main search screen.

The locations listed have 3 background colors:
  • Green means the healthcare service@location has referral information attached to it.
  • Brown means the healthcare service@location never had referral information attached to it, or it has unpublished referral information.
  • Red means
    • IA changed the healthcare service@location's status to something other than Current
    • It was deleted if it is an ARD healthcare service@location.
Green  and Brown are always at the top of the list. These are the Healthcare Service@Locations with the status of Current.
The Red list at the bottom consists of non-current Healthcare Service@locations that once had Published referral information in the ARD.
If the referral information was never published in ARD the Healthcare Service@location will not show in the Red list.

The secondary purpose of the All Locations list is to allow ARD Administrators to recover (copy) referral information from the non-current Healthcare Service@Locations to ones that are current.

Common Scenario:
A Healthcare Service moves from one location to another. In this case the IA Healthcare Service@Location record will be made defunct (non-current) and a new Healthcare Service@Location record will be created with a current status. In this scenario the captured referral guidelines in ARD can become "orphaned" as they are not attached to any current IA healthcare service.

Categories of non-current or orphaned referral guidelines: INDIVIDUAL and COMMON.
The REFERRAL GUIDELINES section of the profile has the prefix INDIVIDUAL or COMMON to help you choose the method below when transferring referral guidelines from a non-current Healthcare Service@Location to a current healthcare service@location.

Individual referral process
  1. Click on a non-current (Red) Healthcare Service@Location at the bottom of the All Locations list.
  2. The non-current referral info is displayed with the link Copy this Referral Process to another Healthcare Service@Location link on the upper right hand corner. Click on the copy link.
  3. Choose a current location (Green or Brown) from the All Locations list. This will be the Healthcare Service@Location you are pasting the referral info into.
  4. The system will display the Edit Referral Info screen populated with the referral info from the non-current Healthcare Service@Location you viewed in the first step.
  5. Click Save and the referral info is transferred from the non-current Healthcare Service@Location to the current one.
  6. Repeat these steps for each Healthcare Service@Location that needs attention.

Common referral process - 2 sub cases.
Case 1: At least 1 current Healthcare Service@Location with common referral info is with current status for this healthcare service; One or more Healthcare Healthcare Service@Locations where replaced by new one.
  1. Click on any current Healthcare Service@Location whether it has referral info (Green) or not (Brown).
  2. The healthcare service location opens in the Edit Referral Info screen populated with the current common referral info.
  3. Save it. 
  4. All locations will be updated with the common referral information, including all the locations that don't have referral info yet (Brown). The non-current referrals (Red) will also be updated.
Case 2:  All Healthcare Healthcare Service@Locations for a healthcare service are set to a non-current status and replaced by new ones. In this case there is no current additional referral info to copy from, so the only alternative is to pick up the non-current common referral process (Red). Follow the steps described in the section Individual Referral Process above to copy/paste the non-current common referral info to the current healthcare service locations.
Generally we want to replicate current common referral info to new or replaced healthcare service locations. We only resort to copying non-current common referral info if there is no other option.

Remember: Some fields can be location specific with the common referral process:
Parking Instructions, Directions, Parking Map, Wait Time, Referral Phone or Referral Fax.
To update these items you have to edit each Healthcare Service@Location separately.

ADDITONAL NOTES:
  • The info icon after the All Locations drop down will be visible to ARD Administrators.
  • The system doesn't allow you to copy referral information from one non-current Healthcare Service@Location to another.

 

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