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Pediatric Neurology Clinic   at
Alberta Children's Hospital
Connect Care Specialty: Pediatric Neurology
Connect Care Department: CGY ACH PED NEUROLOGY CL
Estimated time to routine appointment: Within 6 months
Alberta Health Services - Calgary Zone
SERVICE DESCRIPTION
Diagnosis and treatment of a full range of possible or known neurological conditions for infants, children and youth.Using a coordinated care approach, this service manages children with complex seizure disorders and neurological conditions. Education is also offered to the child, their family, and the community.
Diagnosis and treatment of a full range of possible or known neurological conditions for infants, children and youth.Using a coordinated care approach, this service manages children with complex seizure disorders and neurological conditions. Education is also offered to the child, their family, and the community.
ROUTINE REFERRAL PROCESS
All referrals must have a family doctor/pediatrician or been referred to one. We encourage physicians to call for advice and support for any child with a neurological disorder.
All routine referrals are managed through the Pediatric Neurology clinic. 
Referrals are triaged within 2 business days and are prioritized case by case at the physician’s discretion. Declined referrals will be returned promptly.
Incomplete referrals will be returned for more information.

Connect Care and Non-Connectcare Users see below:

Non Connect Care users:

Complete the referral form as attached below, and fax it to: 403 592 5104.
Please provide ALL requested information as per the Referral Guidelines below. This includes a working diagnosis. Referrals will be declined as 'incomplete' without the requested information.

Connect Care Users:

Select and ‘ADD ORDER’ at the bottom of your encounter
  1. Type in “AMB REF TO PEDIATRIC NEUROLOGY” in the “+ ADD ORDER” box and press enter
  2. Complete the Neurology referral in the necessary fields.
By provider: use your provider name or ordering physician
To Department specialty: autofilled as “pediatric neurology”
To dept: enter CGY ACH PED NEUROLOGY CL
To provider: leave blank (indicate a specific provider ONLY if you have discussed with the Neurologist and they have accepted the patient to be referred to them directly)
Reason: Include the most relevant diagnosis
Priority: Leave as routine (select urgent or semi-urgent ONLY if meets the criteria in “Urgent Referral Process”
Type: Leave as consultation
Patient current status: select stable unless another choice is appropriate
Is the referral for a new problem: yes
Comments: must include the following:
  1. State the presenting symptoms. Be as descriptive as possible and include:
    • The onset of symptoms
    • The frequency of symptoms
    • The duration of symptoms
    • Whether symptoms are getting worse, better, fluctuating, or stable
    • How the symptoms are interfering with functioning
  2. The working diagnosis
  3. The question you would like the Neurology clinic to answer (from the clinician and patient/family)
  4. What interventions or treatments have been tried and were they successful
  5. What investigations have been sent, what are the results, and which are still pending
  6. Provide a neurological examination.
  7. In the case of second opinions, the previous Pediatric Neurology notes
  8. Accept and sign the order
  9. Sign encounter at the bottom
NOTE: Please update the clinic if there is information that becomes available while the patient is waiting to be seen or that could change the urgency of the appointment. Please also update the clinic if the situation has resolved and the appointment with Pediatric Neurology is no longer required.
All referrals must have a family doctor/pediatrician or been referred to one. We encourage physicians to call for advice and support for any child with a neurological disorder.
All routine referrals are managed through the Pediatric Neurology clinic. 
Referrals are triaged within 2 business days and are prioritized case by case at the physician’s discretion. Declined referrals will be returned promptly.
Incomplete referrals will be returned for more information.

Connect Care and Non-Connectcare Users see below:

Non Connect Care users:

Complete the referral form as attached below, and fax it to: 403 592 5104.
Please provide ALL requested information as per the Referral Guidelines below. This includes a working diagnosis. Referrals will be declined as 'incomplete' without the requested information.

Connect Care Users:

Select and ‘ADD ORDER’ at the bottom of your encounter
  1. Type in “AMB REF TO PEDIATRIC NEUROLOGY” in the “+ ADD ORDER” box and press enter
  2. Complete the Neurology referral in the necessary fields.
By provider: use your provider name or ordering physician
To Department specialty: autofilled as “pediatric neurology”
To dept: enter CGY ACH PED NEUROLOGY CL
To provider: leave blank (indicate a specific provider ONLY if you have discussed with the Neurologist and they have accepted the patient to be referred to them directly)
Reason: Include the most relevant diagnosis
Priority: Leave as routine (select urgent or semi-urgent ONLY if meets the criteria in “Urgent Referral Process”
Type: Leave as consultation
Patient current status: select stable unless another choice is appropriate
Is the referral for a new problem: yes
Comments: must include the following:
  1. State the presenting symptoms. Be as descriptive as possible and include:
    • The onset of symptoms
    • The frequency of symptoms
    • The duration of symptoms
    • Whether symptoms are getting worse, better, fluctuating, or stable
    • How the symptoms are interfering with functioning
  2. The working diagnosis
  3. The question you would like the Neurology clinic to answer (from the clinician and patient/family)
  4. What interventions or treatments have been tried and were they successful
  5. What investigations have been sent, what are the results, and which are still pending
  6. Provide a neurological examination.
  7. In the case of second opinions, the previous Pediatric Neurology notes
  8. Accept and sign the order
  9. Sign encounter at the bottom
NOTE: Please update the clinic if there is information that becomes available while the patient is waiting to be seen or that could change the urgency of the appointment. Please also update the clinic if the situation has resolved and the appointment with Pediatric Neurology is no longer required.
URGENT REFERRAL PROCESS
URGENT 1: Outpatient consultation within 1-5 days (must discuss over phone with Neurologist on call)
Call the Alberta Children’s Hospital Switchboard at 403 955 7211 and request a consult with the Pediatric Neurologist on call. 
All urgent phone referrals MUST be followed up with a comprehensive referral
The following are considered urgent in the context of Pediatric Neurology
  • Suspected infantile spasms
  • Suspected idiopathic intracranial hypertension (imaging has excluded mass lesion)
  • Positive newborn screen for spinal muscular atrophy

URGENT 2:  Outpatient consultation within 1-3 weeks (faxed referral or CC order)
Fax or order through Connect Care a comprehensive referral marked ‘semi-urgent’.
The following are considered semi-urgent in the context of Pediatric Neurology
  • Patient > 1 month old with two or more non-febrile or unprovoked seizures within a month period
  • Infant <18 months with subacute (weeks to months) onset of developmental regression (loss of previously acquired developmental milestones)
URGENT 1: Outpatient consultation within 1-5 days (must discuss over phone with Neurologist on call)
Call the Alberta Children’s Hospital Switchboard at 403 955 7211 and request a consult with the Pediatric Neurologist on call. 
All urgent phone referrals MUST be followed up with a comprehensive referral
The following are considered urgent in the context of Pediatric Neurology
  • Suspected infantile spasms
  • Suspected idiopathic intracranial hypertension (imaging has excluded mass lesion)
  • Positive newborn screen for spinal muscular atrophy

URGENT 2:  Outpatient consultation within 1-3 weeks (faxed referral or CC order)
Fax or order through Connect Care a comprehensive referral marked ‘semi-urgent’.
The following are considered semi-urgent in the context of Pediatric Neurology
  • Patient > 1 month old with two or more non-febrile or unprovoked seizures within a month period
  • Infant <18 months with subacute (weeks to months) onset of developmental regression (loss of previously acquired developmental milestones)
EMERGENCY REFERRAL PROCESS
In all emergency situations call 911 or go to the nearest emergency department.
If an emergency consult is required by a healthcare provider call:
  • RAAPID SOUTH (South of Red Deer) 1 800 661 1700
The following are considered emergent in the context of Pediatric Neurology:
  • Sudden onset or rapidly progressive (over minutes to hours) neurological symptoms such as
    • Sudden, severe, new onset headache
    • Loss of vision
    • Loss of balance or ataxia
    • Inability to speak or understand instructions
    • Decreased level of consciousness
    • Weakness or inability to move any part of the body
    • Sudden onset chorea
  • Prolonged seizure that is not stopping with medication or clusters of seizures without neurologic recovery in between
  • Seizure or other neurological concerns in a neonate (< 1 month old)
In all emergency situations call 911 or go to the nearest emergency department.
If an emergency consult is required by a healthcare provider call:
  • RAAPID SOUTH (South of Red Deer) 1 800 661 1700
The following are considered emergent in the context of Pediatric Neurology:
  • Sudden onset or rapidly progressive (over minutes to hours) neurological symptoms such as
    • Sudden, severe, new onset headache
    • Loss of vision
    • Loss of balance or ataxia
    • Inability to speak or understand instructions
    • Decreased level of consciousness
    • Weakness or inability to move any part of the body
    • Sudden onset chorea
  • Prolonged seizure that is not stopping with medication or clusters of seizures without neurologic recovery in between
  • Seizure or other neurological concerns in a neonate (< 1 month old)
ELIGIBILITY REQUIREMENTS
Children 0 to 17 years old.

Exclusion Criteria (the following referrals will NOT be accepted to the Pediatric Neurology Clinic):
  • Global developmental delay - unless a specific question is being asked by a pediatrician
  • First seizure in a child over 1 year of age
  • Febrile seizures
  • Atypical febrile seizures - unless a specific question is being asked by a pediatrician
  • Primary headaches that are not interfering with functioning. Please refer to the Pediatric Headache Clinic
  • Syncope or fainting spells
  • Breath-holding spells
  • Self-stimulatory behaviors or stereotypies
  • Incidental findings on investigations
  • Children at risk of seizures who are not having events suspicious for seizure
  • Aggressive behaviors
  • Delayed sleep phase in teenagers or night terrors
  • Referrals on behalf of another health care practitioner without the referring practitioner having assessed the patient for that issue or concern
Children 0 to 17 years old.

Exclusion Criteria (the following referrals will NOT be accepted to the Pediatric Neurology Clinic):
  • Global developmental delay - unless a specific question is being asked by a pediatrician
  • First seizure in a child over 1 year of age
  • Febrile seizures
  • Atypical febrile seizures - unless a specific question is being asked by a pediatrician
  • Primary headaches that are not interfering with functioning. Please refer to the Pediatric Headache Clinic
  • Syncope or fainting spells
  • Breath-holding spells
  • Self-stimulatory behaviors or stereotypies
  • Incidental findings on investigations
  • Children at risk of seizures who are not having events suspicious for seizure
  • Aggressive behaviors
  • Delayed sleep phase in teenagers or night terrors
  • Referrals on behalf of another health care practitioner without the referring practitioner having assessed the patient for that issue or concern
ADDITIONAL SERVICE DETAILS
The Pediatric Neurology Clinic provides assessment, diagnosis, treatment and transition planning for children from birth to 17 years of age who have neurological disorders in collaboration with the community physicians. These include seizures, epilepsy, debilitating headache disorders including migraines, neuromuscular diseases, movement disorders, brain injury and stroke.
The Pediatric Neurology Clinic operates as a consultative or shared-care model. We do not provide primary care services.
 
The Pediatric Neurology Clinic provides assessment, diagnosis, treatment and transition planning for children from birth to 17 years of age who have neurological disorders in collaboration with the community physicians. These include seizures, epilepsy, debilitating headache disorders including migraines, neuromuscular diseases, movement disorders, brain injury and stroke.
The Pediatric Neurology Clinic operates as a consultative or shared-care model. We do not provide primary care services.
 
COMMUNICATION PROCESS
  • Communication of referral receipt to referral source will occur within 7 calendar days.
  • Communication of appointment details or wait list status to patient and referral source will occur within 14 calendar days.
  • Communication of initial appointment outcomes to referral source will occur within 30 calendar days.
 
PHONE
403-955-5437
FAX
403-592-5104 (Referrals)
403-955-7609 (Prescription refill)
REFERRAL FAX
403-592-5104
REFERRAL FORM
CLICK + TO VIEW REFERRAL GUIDELINES
+-
Routine Reason for Referral
Access Targets convey the clinically appropriate timeframe patients should be seen within, by reason for referral and priority level.
Access Target
Required Information/Investigations
Timing
Additional Details
+-
Epilepsy
< 6 Months
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please indicate the specific question or concern for which you believe this patient needs to be seen by a Pediatric Neurologist.
 
Current
Describe abnormal neurological findings (including developmental screening results)
 
Within 1 month
Diagnostic results; CT, MRI, EEG (any available)
 
Within 3 months
Lab work (any available)
 
Within 3 months
Previous medications trialed and failed
 
Greater than 12 months
Seizure description/types
 
Within 3 months
Seizure frequency
 
Within 3 months
Please note: Patients referred with a new or known diagnosis of epilepsy and who have been started on medication will be seen in a routine fashion. Patients who are referred to the epilepsy team for refractory epilepsy, consideration for epilepsy surgery, or for ketogenic diet will be seen more promptly. For patients who have new onset seizures and are referred for possible epilepsy, please see the section on seizure.
+-
Headache
< 6 Months
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please indicate the specific question or concern for which you believe this patient needs to be seen by a Pediatric Neurologist.
 
Current
Describe abnormal neurological findings (including developmental screening results)
 
Within 1 month
Diagnostic results; CT, MRI, EEG (any available)
 
Within 3 months
Lab work (any available)
 
Within 3 months
Functional impairment
 
Within 3 months
Headache frequency
 
Within 3 months
Headache severity
 
Within 3 months
Previous medications trialed and failed
 
Within 12 months
Please note: headache referrals enter a screening process. Usually only atypical headache disorders, worrisome headaches or debilitating headaches will be accepted to be seen by a Pediatic Neurologist. Patients referred for chronic headache management will be redirected to be seen by the Pediatric Headache Clinic Nurse Practitioner. When referrals are not accepted, the physician and patient will be notified.
+-
Movement disorder
< 6 Months
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please indicate the specific question or concern for which you believe this patient needs to be seen by a Pediatric Neurologist.
 
Current
Describe abnormal neurological findings (including developmental screening results)
 
Within 1 month
Diagnostic results; CT, MRI, EEG (any available)
 
Within 3 months
Lab work (any available)
 
Within 3 months
Previous medications trialed and failed
 
Within 6 months
+-
Neuromuscular disorder
< 6 Months
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please indicate the specific question or concern for which you believe this patient needs to be seen by a Pediatric Neurologist.
 
Current
Describe abnormal neurological findings (including developmental screening results)
 
Within 1 month
Diagnostic results; CT, MRI, EEG (any available)
 
Within 3 months
Lab work (any available)
 
Within 3 months
Creatine kinase
 
Within 1 month
Electromyography (if performed)
 
Greater than 12 months
Genetic testing results (if any)
 
Greater than 12 months
Nerve conduction study (if performed)
 
Greater than 12 months
+-
Seizure
< 6 Months
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please indicate the specific question or concern for which you believe this patient needs to be seen by a Pediatric Neurologist.
 
Current
Describe abnormal neurological findings (including developmental screening results)
 
Within 1 month
Diagnostic results; CT, MRI, EEG (any available)
 
Within 3 months
Lab work (any available)
 
Within 3 months
Please note: For patients referred for events suspicious for seizures, please provide a detailed description of the event(s), when the events began, frequency of events, triggers such as sleep deprivation, flashing lights, or hyperventilation. An EEG needs to be ordered separately and can be ordered by the referring physician in advance of the neurology appointment. Patients with focal seizures should be considered for imaging which can be ordered by the referring physician in advance of the neurology appointment. If the patient meets criteria for epilepsy (for example, 2 unprovoked seizures), calling neurology on call for advice regarding starting medication and further work up is advised.
+-
Sleep disorder
< 6 Months
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please indicate the specific question or concern for which you believe this patient needs to be seen by a Pediatric Neurologist.
 
Current
Describe abnormal neurological findings (including developmental screening results)
 
Within 1 month
Diagnostic results; CT, MRI, EEG (any available)
 
Within 3 months
Lab work (any available)
 
Within 3 months
Previous medications or interventions tried
 
Within 6 months
Sleep diary
 
Within 1 month
Please note: Patients with history suggestive of central hypoventilation, narcolepsy, cataplexy, sleep paralysis, periodic hypersomnia (Kleine Levin syndrome), or patients with neurologic disorders (such as epilepsy) with comorbid sleep-wake disorders are seen and evaluated in this clinic. 
+-
Stroke
< 6 Months
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please indicate the specific question or concern for which you believe this patient needs to be seen by a Pediatric Neurologist.
 
Current
Describe abnormal neurological findings (including developmental screening results)
 
Within 1 month
Diagnostic results; CT, MRI, EEG (any available)
 
Within 3 months
Lab work (any available)
 
Within 3 months
Please note: ACUTE STROKE IS A NEUROLOGIC EMERGENCY THAT REQUIRES IMMEDIATE EVALUATION IN THE EMERGENCY DEPARTMENT. Patient with increased risk of stroke and stroke risk factors (systemic, hematologic, or cardiac), other neurovascular concerns, vascular malformations, or remote history of stroke are seen in the stroke outpatient clinic and can be referred on an outpatient basis.
+-
Traumatic brain injury
< 6 Months
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Please indicate the specific question or concern for which you believe this patient needs to be seen by a Pediatric Neurologist.
 
Current
Describe abnormal neurological findings (including developmental screening results)
 
Within 1 month
Diagnostic results; CT, MRI, EEG (any available)
 
Within 3 months
Lab work (any available)
 
Within 3 months
Please note: ACUTE TRAUMATIC BRAIN INJURY IS A NEUROLOGIC EMERGENCY THAT REQUIRES IMMEDIATE EVALUATION IN THE EMERGENCY DEPARTMENT. Patient with a history of acquired brain injury including traumatic, hypoxic-ischemic, post-infectious are seen in the outpatient brain injury clinic. This clinic DOES NOT accept post-concussion referrals.
PATIENT APPOINTMENT INFORMATION
Email
Print
 
MISSED APPOINTMENT GUIDELINES
Missed appointments are minimized by requiring a re-referral after one missed appointment for new referrals.
Missed appointments are minimized by requiring a re-referral after one missed appointment for new referrals.
 
HOURS OF OPERATION
Monday: 8:00 am - 4:15 pm
Tuesday: 8:00 am - 4:15 pm
Wednesday: 8:00 am - 4:15 pm
Thursday: 8:00 am - 4:15 pm
Friday: 8:00 am - 4:15 pm
Description:
Emergencies should be directed to the Neurologist on call or to the Alberta Children's Hospital Emergency Department.
   
 
ADDRESS
Level 1, Neurosciences
28 Oki Drive NW
Calgary Alberta
T3B 6A8
PATIENT APPOINTMENT INSTRUCTIONS
 
DIRECTIONS
Alberta Children's Hospital is located on the corner of 24 Avenue NW and West Campus Drive NW.
Alberta Children's Hospital is located on the corner of 24 Avenue NW and West Campus Drive NW.
 
PHONE
403-955-5437
 
PARKING INSTRUCTIONS
Rates apply 24 hours per day, and are in effect for all public parkers, including those with provincially issued placards for persons with disabilities.
Paystations accept Canadian coins, Canadian bills or credit card (Visa, MasterCard, and American Express).
Parking Office and Kiosk accept payment by cash, credit card, debit or cheque.
Rates apply 24 hours per day, and are in effect for all public parkers, including those with provincially issued placards for persons with disabilities.
Paystations accept Canadian coins, Canadian bills or credit card (Visa, MasterCard, and American Express).
Parking Office and Kiosk accept payment by cash, credit card, debit or cheque.
 
EMAIL
VIRTUAL APPOINTMENT INFORMATION
Initial appointemnts/new assessments are completed in-person. Some follow-up appointments may be scheduled virtually.
Initial appointemnts/new assessments are completed in-person. Some follow-up appointments may be scheduled virtually.
 
 
WHEELCHAIR ACCESSIBILITY
Yes

This facility is wheelchair accessible and has an elevator on site


The primary purpose of the All Locations list is to let the user easily access any location of a healthcare service without going back to the main search screen.

The locations listed have 3 background colors:
  • Green means the healthcare service@location has referral information attached to it.
  • Brown means the healthcare service@location never had referral information attached to it, or it has unpublished referral information.
  • Red means
    • IA changed the healthcare service@location's status to something other than Current
    • It was deleted if it is an ARD healthcare service@location.
Green  and Brown are always at the top of the list. These are the Healthcare Service@Locations with the status of Current.
The Red list at the bottom consists of non-current Healthcare Service@locations that once had Published referral information in the ARD.
If the referral information was never published in ARD the Healthcare Service@location will not show in the Red list.

The secondary purpose of the All Locations list is to allow ARD Administrators to recover (copy) referral information from the non-current Healthcare Service@Locations to ones that are current.

Common Scenario:
A Healthcare Service moves from one location to another. In this case the IA Healthcare Service@Location record will be made defunct (non-current) and a new Healthcare Service@Location record will be created with a current status. In this scenario the captured referral guidelines in ARD can become "orphaned" as they are not attached to any current IA healthcare service.

Categories of non-current or orphaned referral guidelines: INDIVIDUAL and COMMON.
The REFERRAL GUIDELINES section of the profile has the prefix INDIVIDUAL or COMMON to help you choose the method below when transferring referral guidelines from a non-current Healthcare Service@Location to a current healthcare service@location.

Individual referral process
  1. Click on a non-current (Red) Healthcare Service@Location at the bottom of the All Locations list.
  2. The non-current referral info is displayed with the link Copy this Referral Process to another Healthcare Service@Location link on the upper right hand corner. Click on the copy link.
  3. Choose a current location (Green or Brown) from the All Locations list. This will be the Healthcare Service@Location you are pasting the referral info into.
  4. The system will display the Edit Referral Info screen populated with the referral info from the non-current Healthcare Service@Location you viewed in the first step.
  5. Click Save and the referral info is transferred from the non-current Healthcare Service@Location to the current one.
  6. Repeat these steps for each Healthcare Service@Location that needs attention.

Common referral process - 2 sub cases.
Case 1: At least 1 current Healthcare Service@Location with common referral info is with current status for this healthcare service; One or more Healthcare Healthcare Service@Locations where replaced by new one.
  1. Click on any current Healthcare Service@Location whether it has referral info (Green) or not (Brown).
  2. The healthcare service location opens in the Edit Referral Info screen populated with the current common referral info.
  3. Save it. 
  4. All locations will be updated with the common referral information, including all the locations that don't have referral info yet (Brown). The non-current referrals (Red) will also be updated.
Case 2:  All Healthcare Healthcare Service@Locations for a healthcare service are set to a non-current status and replaced by new ones. In this case there is no current additional referral info to copy from, so the only alternative is to pick up the non-current common referral process (Red). Follow the steps described in the section Individual Referral Process above to copy/paste the non-current common referral info to the current healthcare service locations.
Generally we want to replicate current common referral info to new or replaced healthcare service locations. We only resort to copying non-current common referral info if there is no other option.

Remember: Some fields can be location specific with the common referral process:
Parking Instructions, Directions, Parking Map, Wait Time, Referral Phone or Referral Fax.
To update these items you have to edit each Healthcare Service@Location separately.

ADDITONAL NOTES:
  • The info icon after the All Locations drop down will be visible to ARD Administrators.
  • The system doesn't allow you to copy referral information from one non-current Healthcare Service@Location to another.

 

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