Hereditary Cancer Clinic   at
Alberta Children's Hospital
Connect Care Specialty: Genetics
Connect Care Department: CGY ACH HEREDITARY CANCER
Estimated time to routine appointment: Within 18 months
Alberta Health Services - Provincial Health Services
SERVICE DESCRIPTION
Provides genetic risk assessment, counselling and genetic testing for Albertans and their families who are affected by or at risk for a hereditary cancer syndrome.The goals for this clinic are to facilitate cancer management decisions, and recommend optimal screening and cancer prevention strategies for affected individuals and high risk families.

The consultation service begins with an assessment of a patients' personal and family history for features of hereditary cancer syndromes.

Genetic Counselling is then provided to patients who meet the criteria, in order to share genetic risk information, discuss the benefits, risks, limitations of genetic testing (if indicated for the patient and / or at-risk relatives), and to discuss recommendations for cancer management and surveillance.

Telehealth is available for Alberta residents.

For more information visit the Clinical & Metabolic Genetics website.
Provides genetic risk assessment, counselling and genetic testing for Albertans and their families who are affected by or at risk for a hereditary cancer syndrome.The goals for this clinic are to facilitate cancer management decisions, and recommend optimal screening and cancer prevention strategies for affected individuals and high risk families.

The consultation service begins with an assessment of a patients' personal and family history for features of hereditary cancer syndromes.

Genetic Counselling is then provided to patients who meet the criteria, in order to share genetic risk information, discuss the benefits, risks, limitations of genetic testing (if indicated for the patient and / or at-risk relatives), and to discuss recommendations for cancer management and surveillance.

Telehealth is available for Alberta residents.

For more information visit the Clinical & Metabolic Genetics website.
ROUTINE REFERRAL PROCESS
Referrals that are accompanied with a completed family history form are reviewed and triaged. If a family history form does not accompany the referral, the patient is notified and provided with an online or paper version of this form. If no family history form is returned, the referral is declined.
Once family history is available, genetic risk assessment and triage is completed.  Triage is completed considering medical urgency, as well as the likelihood of a hereditary cancer syndrome based on reported personal and family history. 
Referrals that are accompanied with a completed family history form are reviewed and triaged. If a family history form does not accompany the referral, the patient is notified and provided with an online or paper version of this form. If no family history form is returned, the referral is declined.
Once family history is available, genetic risk assessment and triage is completed.  Triage is completed considering medical urgency, as well as the likelihood of a hereditary cancer syndrome based on reported personal and family history. 
URGENT REFERRAL PROCESS
Referral form requests rationale for urgency of referral. Only the following reasons for referral are considered urgent:
  • When a diagnosis of a hereditary cancer syndrome may impact management and/or treatment decisions for a recently diagnosed cancer.
  • Palliative patient requiring urgent genetic assessment.
Referral form requests rationale for urgency of referral. Only the following reasons for referral are considered urgent:
  • When a diagnosis of a hereditary cancer syndrome may impact management and/or treatment decisions for a recently diagnosed cancer.
  • Palliative patient requiring urgent genetic assessment.
EMERGENCY REFERRAL PROCESS
Please call the ACH Switchboard at 403-955-7211 and ask to speak to the Medical Geneticist on-call.
Please call the ACH Switchboard at 403-955-7211 and ask to speak to the Medical Geneticist on-call.
ELIGIBILITY REQUIREMENTS
Albertans affected or at moderate to high risk for hereditary cancer syndrome determined through a genetic risk evaluation of the individual's medical and family history.
Those at low to moderate risk for a hereditary cancer syndrome based on personal and family history may be declined referral.

Calgary patients are seen at the Alberta Children's Hospital. Patients residing outside of Calgary may be seen in Calgary, by telehealth or in one of the outreach clinics (Lethbridge, Medicine Hat or Red Deer). This is determined by the Calgary Hereditary Cancer Clinic.
Albertans affected or at moderate to high risk for hereditary cancer syndrome determined through a genetic risk evaluation of the individual's medical and family history.
Those at low to moderate risk for a hereditary cancer syndrome based on personal and family history may be declined referral.

Calgary patients are seen at the Alberta Children's Hospital. Patients residing outside of Calgary may be seen in Calgary, by telehealth or in one of the outreach clinics (Lethbridge, Medicine Hat or Red Deer). This is determined by the Calgary Hereditary Cancer Clinic.
ADDITIONAL SERVICE DETAILS
Individual and group pre-test genetic counseling offered (indication dependent).
Genetic testing for women with serous epithelial ovarian cancer is offered in Calgary through a collaborative service model with TBCC Gyne-Oncology Clinic. Patient brochure and education video available.
Clinical and Metabolic Genetics Program website:  https://www.albertahealthservices.ca/info/page15513.aspx
Individual and group pre-test genetic counseling offered (indication dependent).
Genetic testing for women with serous epithelial ovarian cancer is offered in Calgary through a collaborative service model with TBCC Gyne-Oncology Clinic. Patient brochure and education video available.
Clinical and Metabolic Genetics Program website:  https://www.albertahealthservices.ca/info/page15513.aspx
COMMUNICATION PROCESS
  • Communication of referral receipt to referral source will occur within 7 calendar days.
  • Communication of appointment details or wait list status to patient and referral source will occur within 30 calendar days.
 
CLICK + TO VIEW REFERRAL GUIDELINES
Routine Reason for Referral
Access Targets convey the clinically appropriate timeframe patients should be seen within, by reason for referral and priority level.
Access Target
Required Information/Investigations
Investigation Timing
Additional Details
Genetic susceptibility to cancer
Prior to triage, a completed family history form required (form available with Referral)
 
At time of referral

Confirmation of Cancer Diagnosis of patient if applicable (necessary for triage)
 
At time of referral

Completed family history formPathology from any malignanciesGenetic testing results from any relatives diagnosed with a hereditary cancer syndrome.
 
at time of referral

Hereditary breast and ovarian cancer syndrome
Prior to triage, a completed family history form required (form available with Referral)
 
At time of referral

Confirmation of Cancer Diagnosis of patient if applicable (necessary for triage)
 
At time of referral

Completed family history formPathology from any malignanciesGenetic testing results from any relatives diagnosed with a hereditary cancer syndrome.
 
at time of referral

Lynch syndrome
Prior to triage, a completed family history form required (form available with Referral)
 
At time of referral

Confirmation of Cancer Diagnosis of patient if applicable (necessary for triage)
 
At time of referral

Completed family history formPathology from any malignanciesGenetic testing results from any relatives diagnosed with a hereditary cancer syndrome.
 
at time of referral
PATIENT APPOINTMENT INFORMATION
 
MISSED APPOINTMENT GUIDELINES
A re-referral will be required after 2 missed apointments.
A re-referral will be required after 2 missed apointments.
 
HOURS OF OPERATION
Monday: 8:00 am - 4:15 pm
Tuesday:
Wednesday:
Thursday:
Friday:
   
 
ADDRESS
3 floorClinical Genetics
28 Oki Drive NW
Calgary Alberta
T3B 6A8
PATIENT APPOINTMENT INSTRUCTIONS
  • Bring your Alberta health care card and a piece of government issued photo ID.
  • Check in at reception 15 minutes prior to your scheduled appointment time.
  • You may bring a family member or significant other during your consultation.
  • Please make sure to have someone with you if you are unable to communicate in English.
  • Bring your Alberta health care card and a piece of government issued photo ID.
  • Check in at reception 15 minutes prior to your scheduled appointment time.
  • You may bring a family member or significant other during your consultation.
  • Please make sure to have someone with you if you are unable to communicate in English.
 
DIRECTIONS
Alberta Children's Hospital is located on the corner of 24 Avenue NW and West Campus Drive NW.
Alberta Children's Hospital is located on the corner of 24 Avenue NW and West Campus Drive NW.
 
PHONE
403-955-7373
403-955-7137 (Booking)
 
PARKING INSTRUCTIONS
Location specific. Surface lots, and parkades available at Alberta Children's Hospital.
Location specific. Surface lots, and parkades available at Alberta Children's Hospital.
 
VIRTUAL APPOINTMENT INFORMATION
 
 
WHEELCHAIR ACCESSIBILITY
Yes

This facility is wheelchair accessible and has an elevator on site


The primary purpose of the All Locations list is to let the user easily access any location of a healthcare service without going back to the main search screen.

The locations listed have 3 background colors:
  • Green means the healthcare service@location has referral information attached to it.
  • Brown means the healthcare service@location never had referral information attached to it, or it has unpublished referral information.
  • Red means
    • IA changed the healthcare service@location's status to something other than Current
    • It was deleted if it is an ARD healthcare service@location.
Green  and Brown are always at the top of the list. These are the Healthcare Service@Locations with the status of Current.
The Red list at the bottom consists of non-current Healthcare Service@locations that once had Published referral information in the ARD.
If the referral information was never published in ARD the Healthcare Service@location will not show in the Red list.

The secondary purpose of the All Locations list is to allow ARD Administrators to recover (copy) referral information from the non-current Healthcare Service@Locations to ones that are current.

Common Scenario:
A Healthcare Service moves from one location to another. In this case the IA Healthcare Service@Location record will be made defunct (non-current) and a new Healthcare Service@Location record will be created with a current status. In this scenario the captured referral guidelines in ARD can become "orphaned" as they are not attached to any current IA healthcare service.

Categories of non-current or orphaned referral guidelines: INDIVIDUAL and COMMON.
The REFERRAL GUIDELINES section of the profile has the prefix INDIVIDUAL or COMMON to help you choose the method below when transferring referral guidelines from a non-current Healthcare Service@Location to a current healthcare service@location.

Individual referral process
  1. Click on a non-current (Red) Healthcare Service@Location at the bottom of the All Locations list.
  2. The non-current referral info is displayed with the link Copy this Referral Process to another Healthcare Service@Location link on the upper right hand corner. Click on the copy link.
  3. Choose a current location (Green or Brown) from the All Locations list. This will be the Healthcare Service@Location you are pasting the referral info into.
  4. The system will display the Edit Referral Info screen populated with the referral info from the non-current Healthcare Service@Location you viewed in the first step.
  5. Click Save and the referral info is transferred from the non-current Healthcare Service@Location to the current one.
  6. Repeat these steps for each Healthcare Service@Location that needs attention.

Common referral process - 2 sub cases.
Case 1: At least 1 current Healthcare Service@Location with common referral info is with current status for this healthcare service; One or more Healthcare Healthcare Service@Locations where replaced by new one.
  1. Click on any current Healthcare Service@Location whether it has referral info (Green) or not (Brown).
  2. The healthcare service location opens in the Edit Referral Info screen populated with the current common referral info.
  3. Save it. 
  4. All locations will be updated with the common referral information, including all the locations that don't have referral info yet (Brown). The non-current referrals (Red) will also be updated.
Case 2:  All Healthcare Healthcare Service@Locations for a healthcare service are set to a non-current status and replaced by new ones. In this case there is no current additional referral info to copy from, so the only alternative is to pick up the non-current common referral process (Red). Follow the steps described in the section Individual Referral Process above to copy/paste the non-current common referral info to the current healthcare service locations.
Generally we want to replicate current common referral info to new or replaced healthcare service locations. We only resort to copying non-current common referral info if there is no other option.

Remember: Some fields can be location specific with the common referral process:
Parking Instructions, Directions, Parking Map, Wait Time, Referral Phone or Referral Fax.
To update these items you have to edit each Healthcare Service@Location separately.

ADDITONAL NOTES:
  • The info icon after the All Locations drop down will be visible to ARD Administrators.
  • The system doesn't allow you to copy referral information from one non-current Healthcare Service@Location to another.

 

V5.1