Fabry's Cardiomyopathy Clinic   at
South Health Campus

Alberta Health Services - Calgary Zone



Estimated time to routine appointment: Within 1 month
SERVICE DESCRIPTION
Services provided to patients who have a confirmed diagnosis of Fabry's disease.
This clinic provides ongoing assessment, care, treatment, and monitoring of patients who have been diagnosed with Fabry's disease with known or suspected cardiac involvement.
EMERGENCY REFERRAL PROCESS
URGENT REFERRAL PROCESS
Please call 403-956-2666.
Please call 403-956-2666.
ROUTINE REFERRAL PROCESS
Please fax referral to 403-956-2695.
Please fax referral to 403-956-2695.
ELIGIBILITY REQUIREMENTS
patients who have a confirmed diagnosis of Fabry's disease
patients who have a confirmed diagnosis of Fabry's disease
REFERRAL PHONE
403-956-2666
REFERRAL FAX
403-956-2695
PHONE
403-956-2666
FAX
403-956-2695
REFERRAL GUIDELINES
Routine Reason for Referral
Access Targets convey the clinically appropriate timeframe patients should be seen within, by reason for referral and priority level.
Access Target
Required Information/Investigations
Timing
Additional Details
Fabry's disease
Medication List (dose, frequency, route)
| Within 1 month

Past medical history
| Within 1 month

Echocardiogram
| Within 12 months

Laboratory Results
| Most recent

MRI
| Within 12 months
Fabry's disease with known cardiac involvement.
ADDITIONAL SERVICE DETAILS
Pediatric patients with suspected Fabry's disease should be referred to Genetics at  the Alberta Children's Hospital.
COMMUNICATION PROCESS
Communication of referral receipt to referral
source will occur within 7 calendar days.
 
Communication of appointment details or wait list status to patient and referral
source will occur within 14 calendar days.
 
Communication of initial appointment outcomes to referral
source will occur within 30 calendar days.
 
MISSED APPOINTMENT GUIDELINES
Currently in development.
Currently in development.
DIRECTIONS
The Fabry's Cardiomyopathy Clinic at SHC is located on level 5, module 5A.
South Health Campus information
The Fabry's Cardiomyopathy Clinic at SHC is located on level 5, module 5A.
South Health Campus information
PARKING MAP
ADDRESS
5 floor, Clinic 5A
4448 Front Street SE
Calgary Alberta
T3M 1M4
HOURS OF OPERATION
Monday: 8:00 am - 4:15 pm
Tuesday: 8:00 am - 4:15 pm
Wednesday: 8:00 am - 4:15 pm
Thursday: 8:00 am - 4:15 pm
Friday: 8:00 am - 4:15 pm
   
WHEELCHAIR ACCESSIBILITY
Yes

This facility is wheelchair accessible.


The primary purpose of the All Locations list is to let the user easily access any location of a service without going back to the main search screen.

The locations listed have 3 background colors:
  • Green means the service@location has referral information attached to it.
  • Brown means the service@location never had referral information attached to it, or it has unpublished referral information.
  • Red means
    • IA changed the service@location's status to something other than Current
    • It was deleted if it is an ARD service@location.
Green  and Brown are always at the top of the list. These are the Service@Locations with the status of Current.
The Red list at the bottom consists of non-current Service@locations that once had Published referral information in the ARD.
If the referral information was never published in ARD the Service@location will not show in the Red list.

The secondary purpose of the All Locations list is to allow ARD Administrators to recover (copy) referral information from the non-current Service@Locations to ones that are current.

Common Scenario:
A Service moves from one location to another. In this case the IA Service@Location record will be made defunct (non-current) and a new Service@Location record will be created with a current status. In this scenario the captured referral guidelines in ARD can become "orphaned" as they are not attached to any current IA service.

Categories of non-current or orphaned referral guidelines: INDIVIDUAL and COMMON.
The REFERRAL GUIDELINES section of the profile has the prefix INDIVIDUAL or COMMON to help you choose the method below when transferring referral guidelines from a non-current Service@Location to a current service@location.

Individual referral process
  1. Click on a non-current (Red) Service@Location at the bottom of the All Locations list.
  2. The non-current referral info is displayed with the link Copy this Referral Process to another Service@Location link on the upper right hand corner. Click on the copy link.
  3. Choose a current location (Green or Brown) from the All Locations list. This will be the Service@Location you are pasting the referral info into.
  4. The system will display the Edit Referral Info screen populated with the referral info from the non-current Service@Location you viewed in the first step.
  5. Click Save and the referral info is transferred from the non-current Service@Location to the current one.
  6. Repeat these steps for each Service@Location that needs attention.

Common referral process - 2 sub cases.
Case 1: At least 1 current Service@Location with common referral info is with current status for this service; One or more Service@Locations where replaced by new one.
  1. Click on any current Service@Location whether it has referral info (Green) or not (Brown).
  2. The service location opens in the Edit Referral Info screen populated with the current common referral info.
  3. Save it. 
  4. All locations will be updated with the common referral information, including all the locations that don't have referral info yet (Brown). The non-current referrals (Red) will also be updated.
Case 2:  All Service@Locations for a service are set to a non-current status and replaced by new ones. In this case there is no current additional referral info to copy from, so the only alternative is to pick up the non-current common referral process (Red). Follow the steps described in the section Individual Referral Process above to copy/paste the non-current common referral info to the current service locations.
Generally we want to replicate current common referral info to new or replaced service locations. We only resort to copying non-current common referral info if there is no other option.

Remember: Some fields can be location specific with the common referral process:
Parking Instructions, Directions, Parking Map, Wait Time, Referral Phone or Referral Fax.
To update these items you have to edit each Service@Location separately.

ADDITONAL NOTES:
  • The info icon after the All Locations drop down will be visible to ARD Administrators.
  • The system doesn't allow you to copy referral information from one non-current Service@Location to another.

 

V4.12