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Neurodevelopmental Disorder Program   at
Alberta Children's Hospital
Connect Care Specialty: Pediatrics
Connect Care Department: CGY ACH COMPLEX CARE SRVCS
Estimated time to routine appointment: Within 3 months
Alberta Health Services - Calgary Zone
SERVICE DESCRIPTION
The Neurodevelopmental Disorder (NDD) care coordination program is a stream under Complex Care, that is a specialized program aimed to improve and support the care of children with neuro-developmental complexity. These children are primarily cared for by community pediatrics, with support from subspecialists at the Alberta Children's Hospital.The NDD stream provides comprehensive support for patients and families who receive care in the hospital, community, school, or at home. The NDD team is composed of care coordinators, who help patients and families with accessing and navigating the systems and services they need. Care coordination includes patient and family-centered, psycho-social assessment driven, team-based activity designed to meet the needs of children and youth. The NDD partners, alongside the referring care team, work collaboratively to coordinate care and address interrelated medical, social, developmental, educational, and financial needs to achieve optimal health and wellness outcomes for patients and families.

Services Include:
  • conduct needs assessment and set priorities
  • care coordination across community and AHS
  • care planning support
  • assist with self-management and self-advocacy / empowerment through education
  • link to basic and specialty resources
  • enhance accessibility and address disparities / inequities
  • support for transition between care settings
  • collaborate with family, care providers, school, community, and others
  • navigate with stakeholders, identify needs, and next steps with families
  • explore community activities and resources
  • improve family access and supports
  • medical, development, and mental monitoring and information sharing
The team does not assume a primary care / therapy team role. NDD requires active participation from the patient’s care team(s) (e.g., social work, physician, family, school team) and is not considered a discharge plan.
The Neurodevelopmental Disorder (NDD) care coordination program is a stream under Complex Care, that is a specialized program aimed to improve and support the care of children with neuro-developmental complexity. These children are primarily cared for by community pediatrics, with support from subspecialists at the Alberta Children's Hospital.The NDD stream provides comprehensive support for patients and families who receive care in the hospital, community, school, or at home. The NDD team is composed of care coordinators, who help patients and families with accessing and navigating the systems and services they need. Care coordination includes patient and family-centered, psycho-social assessment driven, team-based activity designed to meet the needs of children and youth. The NDD partners, alongside the referring care team, work collaboratively to coordinate care and address interrelated medical, social, developmental, educational, and financial needs to achieve optimal health and wellness outcomes for patients and families.

Services Include:
  • conduct needs assessment and set priorities
  • care coordination across community and AHS
  • care planning support
  • assist with self-management and self-advocacy / empowerment through education
  • link to basic and specialty resources
  • enhance accessibility and address disparities / inequities
  • support for transition between care settings
  • collaborate with family, care providers, school, community, and others
  • navigate with stakeholders, identify needs, and next steps with families
  • explore community activities and resources
  • improve family access and supports
  • medical, development, and mental monitoring and information sharing
The team does not assume a primary care / therapy team role. NDD requires active participation from the patient’s care team(s) (e.g., social work, physician, family, school team) and is not considered a discharge plan.
ROUTINE REFERRAL PROCESS
Please review eligibility requirements and referral guidelines before making a referral to this service. Ensure that family is willing and consent to connect with team to be contacted by program. Referrals accepted by Community physicians, subspecialists, and ACH clinics.
  • Non-Connect Care Users: Complete the referral form and send it to the service using the contact information in this profile. Referral forms are available in PDF format - please email maya.sumaida@albertahealthservices.ca for a copy.
  • Connect Care: Use the Ambulatory Referral Order to ‘Pediatrics’ to department ‘CGY ACH COMPLEX CARE SRVCS’ using [.NDDCCPREFERRAL] SmartPhrase in comments. The SmartPhrase is searchable in SmartPhrases Lookup, where you will +Add Me under Sharing.
Please review eligibility requirements and referral guidelines before making a referral to this service. Ensure that family is willing and consent to connect with team to be contacted by program. Referrals accepted by Community physicians, subspecialists, and ACH clinics.
  • Non-Connect Care Users: Complete the referral form and send it to the service using the contact information in this profile. Referral forms are available in PDF format - please email maya.sumaida@albertahealthservices.ca for a copy.
  • Connect Care: Use the Ambulatory Referral Order to ‘Pediatrics’ to department ‘CGY ACH COMPLEX CARE SRVCS’ using [.NDDCCPREFERRAL] SmartPhrase in comments. The SmartPhrase is searchable in SmartPhrases Lookup, where you will +Add Me under Sharing.
URGENT REFERRAL PROCESS
Direct patients to the nearest Emergency Department if they are experiencing a serious illness. Patients with potentially life-threatening conditions should immediately phone 9-1-1.
Direct patients to the nearest Emergency Department if they are experiencing a serious illness. Patients with potentially life-threatening conditions should immediately phone 9-1-1.
EMERGENCY REFERRAL PROCESS
Direct patients to the nearest Emergency Department if they are experiencing a serious illness. Patients with potentially life-threatening conditions should immediately phone 9-1-1.
Direct patients to the nearest Emergency Department if they are experiencing a serious illness. Patients with potentially life-threatening conditions should immediately phone 9-1-1.
ELIGIBILITY REQUIREMENTS
Child/ Youth Inclusion
  • Diagnosed with a Neurodevelopmental Disorder (g., autism, ADHD, intellectual disability)
  • Functional limitations with cooccurring medical, mental health, and/or behavioural challenges
  • High Health Care Utilization and actively followed by a subspecialty pediatric clinic(s) or program(s) (e.g., clinic at ACH, Richmond Road, etc.)
  • Patient and caregiver need (high intensity direct care requirements and associated impact on family functioning [g., financial, demands on time, appointments, and unmet care needs] and psychosocial/systemic complexity factors may be present)
  • Require support beyond the standard level, which cannot be provided by specialized or community resources, and which negatively affects the medical, social, developmental, educational, and financial need of the patient and their family
Child/ Youth Exclusion
  • Over 18 years of age
  • Being referred for acute medical and mental health crisis emergency
Child/ Youth Inclusion
  • Diagnosed with a Neurodevelopmental Disorder (g., autism, ADHD, intellectual disability)
  • Functional limitations with cooccurring medical, mental health, and/or behavioural challenges
  • High Health Care Utilization and actively followed by a subspecialty pediatric clinic(s) or program(s) (e.g., clinic at ACH, Richmond Road, etc.)
  • Patient and caregiver need (high intensity direct care requirements and associated impact on family functioning [g., financial, demands on time, appointments, and unmet care needs] and psychosocial/systemic complexity factors may be present)
  • Require support beyond the standard level, which cannot be provided by specialized or community resources, and which negatively affects the medical, social, developmental, educational, and financial need of the patient and their family
Child/ Youth Exclusion
  • Over 18 years of age
  • Being referred for acute medical and mental health crisis emergency
COMMUNICATION PROCESS
 
PHONE
403-955-7281
FAX
403-668-2150
REFERRAL FORM
LINKED SPECIALISTS
CLICK + TO VIEW REFERRAL GUIDELINES
+-
Routine Reason for Referral
Access Targets convey the clinically appropriate timeframe patients should be seen within, by reason for referral and priority level.
Access Target
Required Information/Investigations
Timing
Additional Details
+-
Complex neurodevelopmental disorder
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
Care coordination for complex neurodevelopmental disorder(s)
PATIENT APPOINTMENT INFORMATION
Email
Print
 
MISSED APPOINTMENT GUIDELINES
 
HOURS OF OPERATION
Monday: 8:00 am - 4:15 pm
Tuesday: 8:00 am - 4:15 pm
Wednesday: 8:00 am - 4:15 pm
Thursday: 8:00 am - 4:15 pm
Friday: 8:00 am - 4:15 pm
Description:
To list hours of other service or program times. 
   
 
ADDRESS
28 Oki Drive NW
Calgary Alberta
T3B 6A8
PATIENT APPOINTMENT INSTRUCTIONS
 
DIRECTIONS
 
PHONE
403-955-7281
 
PARKING INSTRUCTIONS
 
EMAIL
VIRTUAL APPOINTMENT INFORMATION
 
PARKING MAP
 
WHEELCHAIR ACCESSIBILITY
Yes

This facility is wheelchair accessible and has an elevator on site


The primary purpose of the All Locations list is to let the user easily access any location of a healthcare service without going back to the main search screen.

The locations listed have 3 background colors:
  • Green means the healthcare service@location has referral information attached to it.
  • Brown means the healthcare service@location never had referral information attached to it, or it has unpublished referral information.
  • Red means
    • IA changed the healthcare service@location's status to something other than Current
    • It was deleted if it is an ARD healthcare service@location.
Green  and Brown are always at the top of the list. These are the Healthcare Service@Locations with the status of Current.
The Red list at the bottom consists of non-current Healthcare Service@locations that once had Published referral information in the ARD.
If the referral information was never published in ARD the Healthcare Service@location will not show in the Red list.

The secondary purpose of the All Locations list is to allow ARD Administrators to recover (copy) referral information from the non-current Healthcare Service@Locations to ones that are current.

Common Scenario:
A Healthcare Service moves from one location to another. In this case the IA Healthcare Service@Location record will be made defunct (non-current) and a new Healthcare Service@Location record will be created with a current status. In this scenario the captured referral guidelines in ARD can become "orphaned" as they are not attached to any current IA healthcare service.

Categories of non-current or orphaned referral guidelines: INDIVIDUAL and COMMON.
The REFERRAL GUIDELINES section of the profile has the prefix INDIVIDUAL or COMMON to help you choose the method below when transferring referral guidelines from a non-current Healthcare Service@Location to a current healthcare service@location.

Individual referral process
  1. Click on a non-current (Red) Healthcare Service@Location at the bottom of the All Locations list.
  2. The non-current referral info is displayed with the link Copy this Referral Process to another Healthcare Service@Location link on the upper right hand corner. Click on the copy link.
  3. Choose a current location (Green or Brown) from the All Locations list. This will be the Healthcare Service@Location you are pasting the referral info into.
  4. The system will display the Edit Referral Info screen populated with the referral info from the non-current Healthcare Service@Location you viewed in the first step.
  5. Click Save and the referral info is transferred from the non-current Healthcare Service@Location to the current one.
  6. Repeat these steps for each Healthcare Service@Location that needs attention.

Common referral process - 2 sub cases.
Case 1: At least 1 current Healthcare Service@Location with common referral info is with current status for this healthcare service; One or more Healthcare Healthcare Service@Locations where replaced by new one.
  1. Click on any current Healthcare Service@Location whether it has referral info (Green) or not (Brown).
  2. The healthcare service location opens in the Edit Referral Info screen populated with the current common referral info.
  3. Save it. 
  4. All locations will be updated with the common referral information, including all the locations that don't have referral info yet (Brown). The non-current referrals (Red) will also be updated.
Case 2:  All Healthcare Healthcare Service@Locations for a healthcare service are set to a non-current status and replaced by new ones. In this case there is no current additional referral info to copy from, so the only alternative is to pick up the non-current common referral process (Red). Follow the steps described in the section Individual Referral Process above to copy/paste the non-current common referral info to the current healthcare service locations.
Generally we want to replicate current common referral info to new or replaced healthcare service locations. We only resort to copying non-current common referral info if there is no other option.

Remember: Some fields can be location specific with the common referral process:
Parking Instructions, Directions, Parking Map, Wait Time, Referral Phone or Referral Fax.
To update these items you have to edit each Healthcare Service@Location separately.

ADDITONAL NOTES:
  • The info icon after the All Locations drop down will be visible to ARD Administrators.
  • The system doesn't allow you to copy referral information from one non-current Healthcare Service@Location to another.

 

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