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Central and Northern Alberta Adult Peripheral Nerve Clinic   at
Glenrose Rehabilitation Hospital
Specialty: Neurology
Connect Care Department: EDM GRH PERIPHERAL NERVE
Estimated time to routine appointment: Greater than 18 months
Alberta Health Services - Edmonton Zone
SERVICE DESCRIPTION
The Central and Northern Alberta Adult Peripheral Nerve Clinic helps adults with nerve injuries in their arms or legs.This clinic treats people with nerve injuries that might require surgery. Such as:
  • shoulder injuries
  • upper and lower body injuries
  • and other nerve injuries that may need surgery
Patients see a doctor called a physiatrist for a test called electromyography on their injured nerves. Then, they make an appointment to see a plastic surgeon, neurosurgeon, or bone doctor (orthopedic surgeon). They can also get help at the Glenrose Rehabilitation Hospital for therapy and exercises to improve their health.
The Central and Northern Alberta Adult Peripheral Nerve Clinic helps adults with nerve injuries in their arms or legs.This clinic treats people with nerve injuries that might require surgery. Such as:
  • shoulder injuries
  • upper and lower body injuries
  • and other nerve injuries that may need surgery
Patients see a doctor called a physiatrist for a test called electromyography on their injured nerves. Then, they make an appointment to see a plastic surgeon, neurosurgeon, or bone doctor (orthopedic surgeon). They can also get help at the Glenrose Rehabilitation Hospital for therapy and exercises to improve their health.
ELIGIBILITY REQUIREMENTS
This service is available to individuals who are affected by, or at moderate to high risk for, inherited genetic conditions. Risk level is determined by evaluation of the medical and family history reported at the time of referral.

Reasons for which the Program may decline referrals currently includes:
  1. Patient Resides Outside of Catchment Area: 
    • BC or SK patients who reside within the catchment of the Vancouver or Saskatoon Genetics Programs, or else who can receive care via telehealth by these programs (e.g. genetic counselling appointment only not requiring face-to-face appointment / physical exam).
  2. Personal or Family history of Complex Trait / Multifactorial Condition, for example Celiac Disease and MTHFR.
  3. Request for Genetic Testing for the Following Indications:
    • Cystic Fibrosis testing: for male infertility in cases where the vas deferens is present.
    • Chromosomal microarray (CMA) testing: for children with isolated behavioural abnormality, neurodevelopmental delay, or intellectual disability, CMA can be ordered by pediatrician. Please see Genetics: Chromosomal microarray testing for information for patients and families about this test. 
    • Leber hereditary optic neuropathy genetic testing: for index patients, can be ordered by patient's ophthalmologist.
    Please visit Genetic Laboratory Services Webpage for the Test Directory and requisitions: Genetics and Genomics (formerly Genetic Lab Services) | Alberta Health Services. Any patient found to have a positive genetic test result is subsequently eligible for consultation with Genetic Services and should be referred.
  4.  Direct-to-consumer genetic test results:
    • Patients found to have mutations in genes associated with monogenic conditions are eligible.
    • Variants of uncertain clinical significance or variants with minimal clinical impact are not eligible.
  5. Personal or family history of hypermobility, including hypermobile Ehler’s Danlos syndrome (EDS Type III / Benign Hypermobility syndrome). For primary care management, please refer to the Management section here: Hypermobile Ehlers-Danlos Syndrome - GeneReviews® - NCBI Bookshelf and/or the 2017 EDS Classification for Non-experts - The Ehlers Danlos Society for guidance from the International Consortium on Ehlers-Danlos Syndromes and Related Disorders.
  6. Pediatric patients who carry thalasemia and hemoglobinopathies:  Individuals of reproductive age, are eligible.  Patient-centered resources are available through MyHealthAlberta:
  7. Non-medical indications:
    • paternity testing
    • ancestry testing
    • twin zygosity testing for information purposes.
    • limited or unknown family history.
  8.  Other:
    • If Family History Form or Relevant Genetic/Clinical Information on an affected relative is not provided (when requested) and is required to provide an accurate assessment.
This service is available to individuals who are affected by, or at moderate to high risk for, inherited genetic conditions. Risk level is determined by evaluation of the medical and family history reported at the time of referral.

Reasons for which the Program may decline referrals currently includes:
  1. Patient Resides Outside of Catchment Area: 
    • BC or SK patients who reside within the catchment of the Vancouver or Saskatoon Genetics Programs, or else who can receive care via telehealth by these programs (e.g. genetic counselling appointment only not requiring face-to-face appointment / physical exam).
  2. Personal or Family history of Complex Trait / Multifactorial Condition, for example Celiac Disease and MTHFR.
  3. Request for Genetic Testing for the Following Indications:
    • Cystic Fibrosis testing: for male infertility in cases where the vas deferens is present.
    • Chromosomal microarray (CMA) testing: for children with isolated behavioural abnormality, neurodevelopmental delay, or intellectual disability, CMA can be ordered by pediatrician. Please see Genetics: Chromosomal microarray testing for information for patients and families about this test. 
    • Leber hereditary optic neuropathy genetic testing: for index patients, can be ordered by patient's ophthalmologist.
    Please visit Genetic Laboratory Services Webpage for the Test Directory and requisitions: Genetics and Genomics (formerly Genetic Lab Services) | Alberta Health Services. Any patient found to have a positive genetic test result is subsequently eligible for consultation with Genetic Services and should be referred.
  4.  Direct-to-consumer genetic test results:
    • Patients found to have mutations in genes associated with monogenic conditions are eligible.
    • Variants of uncertain clinical significance or variants with minimal clinical impact are not eligible.
  5. Personal or family history of hypermobility, including hypermobile Ehler’s Danlos syndrome (EDS Type III / Benign Hypermobility syndrome). For primary care management, please refer to the Management section here: Hypermobile Ehlers-Danlos Syndrome - GeneReviews® - NCBI Bookshelf and/or the 2017 EDS Classification for Non-experts - The Ehlers Danlos Society for guidance from the International Consortium on Ehlers-Danlos Syndromes and Related Disorders.
  6. Pediatric patients who carry thalasemia and hemoglobinopathies:  Individuals of reproductive age, are eligible.  Patient-centered resources are available through MyHealthAlberta:
  7. Non-medical indications:
    • paternity testing
    • ancestry testing
    • twin zygosity testing for information purposes.
    • limited or unknown family history.
  8.  Other:
    • If Family History Form or Relevant Genetic/Clinical Information on an affected relative is not provided (when requested) and is required to provide an accurate assessment.
Referral instructions for primary care, community care, private
providers etc. who do not send referrals via Connect Care.
REFERRAL PROCESS - FOR NON-CONNECT CARE USERS
Complete the appropriate referral form or a physician letter and fax it to the referral fax: 403-476-8752.
Complete the appropriate referral form or a physician letter and fax it to the referral fax: 403-476-8752.
REFERRAL PROCESS - FOR CONNECT CARE USERS
Send an Internal Referral using the Ambulatory Referral Order to Genetics, type AHS SOUTH GENETIC SERVICES CAT in the “To Department” section and complete order.
Send an Internal Referral using the Ambulatory Referral Order to Genetics, type AHS SOUTH GENETIC SERVICES CAT in the “To Department” section and complete order.
ADDITIONAL SERVICE DETAILS

If a patient was seen in the past and no diagnosis was made or a follow-up appointment was planned, we are now requesting a re-referral as we are unable to maintain on-time scheduled follow-ups. 


Outreach clinics are offered in both Lethbridge and Medicine Hat, involving medical geneticists, genetic counsellors and genetic assistants. Patients in these cities may still be offered appointments in Calgary, depending on the referral reason. Prenatal Genetics services are no longer available at the Lethbridge and Medicine Hat Outreach Locations. Prenatal Genetics appointments are either coordinated with scheduled Maternal Fetal Medicine appointments or are offered virtually where possible. 

Patients with hypermobility may also find it helpful to watch: Hypermobile Ehlers Danlos Syndrome Information Session.
 
Please encourage your patient to visit the Frequently Asked Questions at: www.ahs.ca/genetics and to review general information about genetics and their health at:  MyHealth.Alberta.ca - Genetics

If a patient was seen in the past and no diagnosis was made or a follow-up appointment was planned, we are now requesting a re-referral as we are unable to maintain on-time scheduled follow-ups. 


Outreach clinics are offered in both Lethbridge and Medicine Hat, involving medical geneticists, genetic counsellors and genetic assistants. Patients in these cities may still be offered appointments in Calgary, depending on the referral reason. Prenatal Genetics services are no longer available at the Lethbridge and Medicine Hat Outreach Locations. Prenatal Genetics appointments are either coordinated with scheduled Maternal Fetal Medicine appointments or are offered virtually where possible. 

Patients with hypermobility may also find it helpful to watch: Hypermobile Ehlers Danlos Syndrome Information Session.
 
Please encourage your patient to visit the Frequently Asked Questions at: www.ahs.ca/genetics and to review general information about genetics and their health at:  MyHealth.Alberta.ca - Genetics

COMMUNICATION PROCESS
  • Referral receipt to referring source within 7 days.
  • Acceptance via appointment details or wait list status letter to referring source and patient within 14 days.
  • Wait list status update every 90 days.
  • Appointment outcome to referral source within 30 days.
 
PHONE
780-735-8811
780-735-7999 Ext. 15722 (Coordinator)
FAX
780-735-8873
REFERRAL PHONE
403-955-7373
REFERRAL FAX
403-476-8752
REFERRAL FORM
REFERRAL ADVICE
LINKED SPECIALISTS
Alberta Referral Directory - Application Error
  
Application Error
Alberta Referral Directory - Application Error


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V6.7

The primary purpose of the All Locations list is to let the user easily access any location of a healthcare service without going back to the main search screen.

The locations listed have 3 background colors:
  • Green means the healthcare service@location has referral information attached to it.
  • Brown means the healthcare service@location never had referral information attached to it, or it has unpublished referral information.
  • Red means
    • IA changed the healthcare service@location's status to something other than Current
    • It was deleted if it is an ARD healthcare service@location.
Green  and Brown are always at the top of the list. These are the Healthcare Service@Locations with the status of Current.
The Red list at the bottom consists of non-current Healthcare Service@locations that once had Published referral information in the ARD.
If the referral information was never published in ARD the Healthcare Service@location will not show in the Red list.

The secondary purpose of the All Locations list is to allow ARD Administrators to recover (copy) referral information from the non-current Healthcare Service@Locations to ones that are current.

Common Scenario:
A Healthcare Service moves from one location to another. In this case the IA Healthcare Service@Location record will be made defunct (non-current) and a new Healthcare Service@Location record will be created with a current status. In this scenario the captured referral guidelines in ARD can become "orphaned" as they are not attached to any current IA healthcare service.

Categories of non-current or orphaned referral guidelines: INDIVIDUAL and COMMON.
The REFERRAL GUIDELINES section of the profile has the prefix INDIVIDUAL or COMMON to help you choose the method below when transferring referral guidelines from a non-current Healthcare Service@Location to a current healthcare service@location.

Individual referral process
  1. Click on a non-current (Red) Healthcare Service@Location at the bottom of the All Locations list.
  2. The non-current referral info is displayed with the link Copy this Referral Process to another Healthcare Service@Location link on the upper right hand corner. Click on the copy link.
  3. Choose a current location (Green or Brown) from the All Locations list. This will be the Healthcare Service@Location you are pasting the referral info into.
  4. The system will display the Edit Referral Info screen populated with the referral info from the non-current Healthcare Service@Location you viewed in the first step.
  5. Click Save and the referral info is transferred from the non-current Healthcare Service@Location to the current one.
  6. Repeat these steps for each Healthcare Service@Location that needs attention.

Common referral process - 2 sub cases.
Case 1: At least 1 current Healthcare Service@Location with common referral info is with current status for this healthcare service; One or more Healthcare Healthcare Service@Locations where replaced by new one.
  1. Click on any current Healthcare Service@Location whether it has referral info (Green) or not (Brown).
  2. The healthcare service location opens in the Edit Referral Info screen populated with the current common referral info.
  3. Save it. 
  4. All locations will be updated with the common referral information, including all the locations that don't have referral info yet (Brown). The non-current referrals (Red) will also be updated.
Case 2:  All Healthcare Healthcare Service@Locations for a healthcare service are set to a non-current status and replaced by new ones. In this case there is no current additional referral info to copy from, so the only alternative is to pick up the non-current common referral process (Red). Follow the steps described in the section Individual Referral Process above to copy/paste the non-current common referral info to the current healthcare service locations.
Generally we want to replicate current common referral info to new or replaced healthcare service locations. We only resort to copying non-current common referral info if there is no other option.

Remember: Some fields can be location specific with the common referral process:
Parking Instructions, Directions, Parking Map, Wait Time, Referral Phone or Referral Fax.
To update these items you have to edit each Healthcare Service@Location separately.

ADDITONAL NOTES:
  • The info icon after the All Locations drop down will be visible to ARD Administrators.
  • The system doesn't allow you to copy referral information from one non-current Healthcare Service@Location to another.

 

V6.7