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Complex Pediatric Therapies Developmental Assessment Clinic   at
Glenrose Rehabilitation Hospital
Specialty: Rehabilitation
Connect Care Department: EDM GRH PED COMPLEX THERAPIES
Estimated time to routine appointment: Within 3 months
Alberta Health Services - Edmonton Zone
SERVICE DESCRIPTION
The Complex Pediatric Therapies Developmental Assessment Clinic (CPTDAC) at Glenrose Rehabilitation Hospital, along with a similar clinic at Alberta Children's Hospital, offers specialized follow-up care for children who have had complex or life-saving medical treatments. These clinics support families by tracking development, growth, and school readiness through personalized assessments and scheduled follow-ups from a team of healthcare professionals.The Complex Pediatric Therapies Developmental Assessment Clinic (CPTDAC) at the Glenrose Rehabilitation Hospital, along with a similar follow-up program at the Alberta Children’s Hospital, provides specialized developmental assessments, monitoring, and family support for children who have received complex or life-saving hospital care. These clinics are part of the Complex Pediatric Therapies Follow-up Program (CPTFP), an interprovincial initiative dedicated to understanding and supporting the developmental needs of children following advanced medical therapies.

The program currently supports children who, prior to six years of age, have experienced solid organ transplantation (heart or kidney), Extracorporeal Membrane Oxygenation (ECMO), Ventricular Assist Device (VAD) support, septic shock, or cardiac arrest. It also includes infants who required chronic peritoneal dialysis within their first year of life.

CPTFP provide guidance in areas such as early developmental milestones, school readiness, and learning needs. Children are typically seen 4–8 months after their treatment or surgery, again at 18–24 months, and between 4–5 years of age. Each visit is individualized to the child’s age and developmental stage, involving an interdisciplinary team of healthcare professionals who support the child’s growth, well-being, and family’s ongoing care journey.
The Complex Pediatric Therapies Developmental Assessment Clinic (CPTDAC) at Glenrose Rehabilitation Hospital, along with a similar clinic at Alberta Children's Hospital, offers specialized follow-up care for children who have had complex or life-saving medical treatments. These clinics support families by tracking development, growth, and school readiness through personalized assessments and scheduled follow-ups from a team of healthcare professionals.The Complex Pediatric Therapies Developmental Assessment Clinic (CPTDAC) at the Glenrose Rehabilitation Hospital, along with a similar follow-up program at the Alberta Children’s Hospital, provides specialized developmental assessments, monitoring, and family support for children who have received complex or life-saving hospital care. These clinics are part of the Complex Pediatric Therapies Follow-up Program (CPTFP), an interprovincial initiative dedicated to understanding and supporting the developmental needs of children following advanced medical therapies.

The program currently supports children who, prior to six years of age, have experienced solid organ transplantation (heart or kidney), Extracorporeal Membrane Oxygenation (ECMO), Ventricular Assist Device (VAD) support, septic shock, or cardiac arrest. It also includes infants who required chronic peritoneal dialysis within their first year of life.

CPTFP provide guidance in areas such as early developmental milestones, school readiness, and learning needs. Children are typically seen 4–8 months after their treatment or surgery, again at 18–24 months, and between 4–5 years of age. Each visit is individualized to the child’s age and developmental stage, involving an interdisciplinary team of healthcare professionals who support the child’s growth, well-being, and family’s ongoing care journey.
ELIGIBILITY REQUIREMENTS
Children who have had:
  • Complex cardiac surgery at 6 weeks of age or less
  • Cardiac isomerism
  • Solid organ transplant (e.g. heart, kidney) under 6 years of age
  • Extra-Corporeal Membrane Oxygenation (ECMO) life support under 7 years of age for Northern Alberta residents, under 6 years of age assessed in Southern Alberta
  • Ventricular Assist Device (VADs) to give heart support under 6 years of age
  • Cardiopulmonary Resuscitation (CPR) not needing ECMO under 6 years of age
Children who have had:
  • Complex cardiac surgery at 6 weeks of age or less
  • Cardiac isomerism
  • Solid organ transplant (e.g. heart, kidney) under 6 years of age
  • Extra-Corporeal Membrane Oxygenation (ECMO) life support under 7 years of age for Northern Alberta residents, under 6 years of age assessed in Southern Alberta
  • Ventricular Assist Device (VADs) to give heart support under 6 years of age
  • Cardiopulmonary Resuscitation (CPR) not needing ECMO under 6 years of age
Referral instructions for primary care, community care, private
providers etc. who do not send referrals via Connect Care.
REFERRAL PROCESS - FOR NON-CONNECT CARE USERS
Clients are referred by intensivists, cardiologists, and surgeons as part of the Complex Pediatric Therapies Follow-up Program (CPTFP). 
Completion of a referral letter with supporting medical documentation can be faxed to the service using the contact information in the profile.
Clients are referred by intensivists, cardiologists, and surgeons as part of the Complex Pediatric Therapies Follow-up Program (CPTFP). 
Completion of a referral letter with supporting medical documentation can be faxed to the service using the contact information in the profile.
REFERRAL PROCESS - FOR CONNECT CARE USERS
Clients are referred by intensivists, cardiologists, and surgeons as part of the Complex Pediatric Therapies Follow-up Program (CPTFP). 
Send an Internal Referral using the Ambulatory Referral Order to Rehabilitation, type EDM GRH PED COMPLEX THERAPIES in the “To Department” section and complete order.
Clients are referred by intensivists, cardiologists, and surgeons as part of the Complex Pediatric Therapies Follow-up Program (CPTFP). 
Send an Internal Referral using the Ambulatory Referral Order to Rehabilitation, type EDM GRH PED COMPLEX THERAPIES in the “To Department” section and complete order.
ADDITIONAL SERVICE DETAILS
  • New patients receive an initial questionnaire letter asking about developmental concerns, past illnesses, and hospitalizations.
  • Assessments are done at six months post-surgery or treatment; 21 months of age and four-five years of age.  
  • Following the child's referral, letters are sent to the referring physician and parent/guardian with a tentative month and year of the first appointment. 
  • As a specialized clinic, this clinic only occurs on the first two Thursdays of the month.
  • New patients receive an initial questionnaire letter asking about developmental concerns, past illnesses, and hospitalizations.
  • Assessments are done at six months post-surgery or treatment; 21 months of age and four-five years of age.  
  • Following the child's referral, letters are sent to the referring physician and parent/guardian with a tentative month and year of the first appointment. 
  • As a specialized clinic, this clinic only occurs on the first two Thursdays of the month.
COMMUNICATION PROCESS
  • Referral receipt to referring source within 7 days.
  • Acceptance via appointment details or wait list status letter to referring source and patient within 14 days.
  • Wait list status update every 90 days.
  • Appointment outcome to referral source within 30 days.
 
PHONE
780-735-7925
FAX
780-735-6163
REFERRAL PHONE
780-735-7999 ext 15630
REFERRAL FAX
780-735-6163
REFERRAL FORM
CLICK + TO VIEW REFERRAL GUIDELINES
+-
Routine Reason for Referral
Access Targets convey the clinically appropriate timeframe patients should be seen within, by reason for referral and priority level.
Access Target
Required Information/Investigations
Investigation Timing
Additional Details
+-
Cardiac surgery
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
+-
Cardiopulmonary resuscitation
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
+-
Extracorporeal membrane oxygenation
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
+-
Renal dialysis
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
+-
Solid organ transplant
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
+-
VAD maintenance
Medication List (dose, frequency, route)
 
Within 1 month
Past medical history
 
Within 1 month
PATIENT APPOINTMENT INFORMATION
Email
Print
 
MISSED APPOINTMENT GUIDELINES
Reschedule for the next available date, follow-up phone calls to assess developmental progress and a timely assessment.  This process is continued until the child is assessed for the 6 month, 21 month and 4-5 year assessment intervals.  On occasion, the assessment is modified to meet the family's needs.
Reschedule for the next available date, follow-up phone calls to assess developmental progress and a timely assessment.  This process is continued until the child is assessed for the 6 month, 21 month and 4-5 year assessment intervals.  On occasion, the assessment is modified to meet the family's needs.
 
HOURS OF OPERATION
Monday: 8:00 am - 4:00 pm
Tuesday: 8:00 am - 4:00 pm
Wednesday: 8:00 am - 4:00 pm
Thursday: 8:00 am - 4:00 pm
Friday: 8:00 am - 4:00 pm
Description:
As a specialized clinic, this clinic only occurs on the first 2 Thursdays of the month.  Rarely an appointment can be arranged on a Monday, Friday or the other Thursdays.
   
 
ADDRESS
Glenrose East 238
10230 111 Avenue NW
Edmonton Alberta
T5G 0B7
PATIENT APPOINTMENT INSTRUCTIONS
  • Bring your Alberta health care card and a piece of government issued photo ID.
  • Check in at reception 15 minutes prior to your scheduled appointment time.
  • You may bring a family member or significant other during your consultation.
  • Please make sure to have someone with you if you are unable to communicate in English.
  • Bring your Alberta health care card and a piece of government issued photo ID.
  • Check in at reception 15 minutes prior to your scheduled appointment time.
  • You may bring a family member or significant other during your consultation.
  • Please make sure to have someone with you if you are unable to communicate in English.
 
DIRECTIONS
Proceed to the 102 Street Entrance (10230 - 111 Avenue), check in with Admitting/Info Desk.
Proceed to the 102 Street Entrance (10230 - 111 Avenue), check in with Admitting/Info Desk.
 
PHONE
780-735-7925
 
PARKING INSTRUCTIONS
Disabled and public parking is available in the underground parkade and at designated surface stalls.  Pay by plate parking is available.
Disabled and public parking is available in the underground parkade and at designated surface stalls.  Pay by plate parking is available.
 
EMAIL
VIRTUAL APPOINTMENT INFORMATION
 
PARKING MAP
 
WHEELCHAIR ACCESSIBILITY
Yes

Accessible and public parking are available on designated surface and underground parking stalls.

Pay by plate parking is available.


The primary purpose of the All Locations list is to let the user easily access any location of a healthcare service without going back to the main search screen.

The locations listed have 3 background colors:
  • Green means the healthcare service@location has referral information attached to it.
  • Brown means the healthcare service@location never had referral information attached to it, or it has unpublished referral information.
  • Red means
    • IA changed the healthcare service@location's status to something other than Current
    • It was deleted if it is an ARD healthcare service@location.
Green  and Brown are always at the top of the list. These are the Healthcare Service@Locations with the status of Current.
The Red list at the bottom consists of non-current Healthcare Service@locations that once had Published referral information in the ARD.
If the referral information was never published in ARD the Healthcare Service@location will not show in the Red list.

The secondary purpose of the All Locations list is to allow ARD Administrators to recover (copy) referral information from the non-current Healthcare Service@Locations to ones that are current.

Common Scenario:
A Healthcare Service moves from one location to another. In this case the IA Healthcare Service@Location record will be made defunct (non-current) and a new Healthcare Service@Location record will be created with a current status. In this scenario the captured referral guidelines in ARD can become "orphaned" as they are not attached to any current IA healthcare service.

Categories of non-current or orphaned referral guidelines: INDIVIDUAL and COMMON.
The REFERRAL GUIDELINES section of the profile has the prefix INDIVIDUAL or COMMON to help you choose the method below when transferring referral guidelines from a non-current Healthcare Service@Location to a current healthcare service@location.

Individual referral process
  1. Click on a non-current (Red) Healthcare Service@Location at the bottom of the All Locations list.
  2. The non-current referral info is displayed with the link Copy this Referral Process to another Healthcare Service@Location link on the upper right hand corner. Click on the copy link.
  3. Choose a current location (Green or Brown) from the All Locations list. This will be the Healthcare Service@Location you are pasting the referral info into.
  4. The system will display the Edit Referral Info screen populated with the referral info from the non-current Healthcare Service@Location you viewed in the first step.
  5. Click Save and the referral info is transferred from the non-current Healthcare Service@Location to the current one.
  6. Repeat these steps for each Healthcare Service@Location that needs attention.

Common referral process - 2 sub cases.
Case 1: At least 1 current Healthcare Service@Location with common referral info is with current status for this healthcare service; One or more Healthcare Healthcare Service@Locations where replaced by new one.
  1. Click on any current Healthcare Service@Location whether it has referral info (Green) or not (Brown).
  2. The healthcare service location opens in the Edit Referral Info screen populated with the current common referral info.
  3. Save it. 
  4. All locations will be updated with the common referral information, including all the locations that don't have referral info yet (Brown). The non-current referrals (Red) will also be updated.
Case 2:  All Healthcare Healthcare Service@Locations for a healthcare service are set to a non-current status and replaced by new ones. In this case there is no current additional referral info to copy from, so the only alternative is to pick up the non-current common referral process (Red). Follow the steps described in the section Individual Referral Process above to copy/paste the non-current common referral info to the current healthcare service locations.
Generally we want to replicate current common referral info to new or replaced healthcare service locations. We only resort to copying non-current common referral info if there is no other option.

Remember: Some fields can be location specific with the common referral process:
Parking Instructions, Directions, Parking Map, Wait Time, Referral Phone or Referral Fax.
To update these items you have to edit each Healthcare Service@Location separately.

ADDITONAL NOTES:
  • The info icon after the All Locations drop down will be visible to ARD Administrators.
  • The system doesn't allow you to copy referral information from one non-current Healthcare Service@Location to another.

 

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